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Some of these options are clearly better than others. I knew I wanted to filter out anyone for whom my wheelchair would be an immediate deal breaker.
If I were going to be rejected for my muscle weakness, I would rather it be before I was invested and not in person. I also didn't want to waste anyone's time especially my own. This meant putting the disclaimer up front on my profile—two carefully crafted sentences that indicated I had a neurologic disease and used a motorized wheelchair to get around my college campus. I included a trite comment about "loving life!! Many of them didn't message back. Maybe it was the wheelchair, but—I told myself—it could also be that they didn't like brunettes or biology majors.
I learned that any energy spent wondering "Why?
They weren't interested, and that's okay. Someone will be, and maybe I'll be interested in him, too, and that is the only kind of person I need to worry about attracting. It helped that online dating is anonymous.
It felt safer, less personal. Besides, I was only looking for one totally amazing person.
Is that so much to ask for? I didn't think so. He'd appeared on my homepage, one of three suggested matches, but the only one I clicked on. He was wearing a top hat made out of foam and cardboard stapled together. The disclosure on my profile didn't stop sinclair44 whose real name was Josh from messaging me back. It also didn't stop him from taking the four-hour train ride out to meet me for our first date two months later, or from proposing to me with a diamond ring four years after that.
When it came to telling potential dates about my disease, I chose the method that was most comfortable for me—and that was to state it up front. The year-old is forced to only work part time, adhere to a strict diet, take lots of medication and constantly manage her pain — which has taken a toll on her mental health, and her social life.
Matt Garrett, a couple and family therapist with Relationships Australia, is often asked about the right time to disclose hidden illnesses to a new or potential partner.
But, he says, the longer you know some one, the more likely it is that you "need to have that discussion with them". It's incredibly difficult to broach when you're in a new relationship. Kylie has found writing to be a useful outlet to communicate what it's like to live with a chronic illness.
She was also heartened by The Big Sick, an Oscar-nominated rom com about a man whose new girlfriend comes down with an illness that leaves her in a coma. She says there are also a number of other resources available, including support groups, to help people navigate the challenges of dating with an illness. If you have inside knowledge of a topic in the news, contact the ABC. ABC teams share the story behind the story and insights into the making of digital, TV and radio content.
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Unfortunately, many of the difficulties of finding the right match are magnified when you have a chronic illness, especially when your partner is. I'm a single mom living with two forms of arthritis. I've learned that the key to a happy dating life is loving myself first.
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